Thinking about why I’ve become so reactive to what amounts to being almost non-existent as a patient, I’ve wondered why it should matter. Attention from the medical system has never been a sign of happy times so why complain about being ignored? (“Complain” is now the new designation for anything from gentile suggestion to outright and justified critique–the word reduces everything to selfishness on the part of the person speaking out and reduces any cause of harm to the role of the actual victim).
Anyway, in spite of the fact that again my doctor’s office has failed completely to do their job, I’ve managed to book my yearly exam myself. Four months late, but it’s done (as much as anything can be relied on here) and booked for Sept 28. Another win, the Cancer Institute now calls me to confirm missing appointments and feedback from my doctor. In fact, they even call when my oncologist’s assistant doesn’t pass information across the hall to them, as just happened. So in spite of there being no actual care exhibited by anyone connected with my “case” there is one persistent person who calls ME to ask if I’m getting the things her chart says I’m supposed to get. This is like the closest I’ve come to continuity of care here. Even my cardiologist, who said I’d need more surgery after chemo has forgotten me–so this is progress.
My next adventure was calling the Alberta Health Community Engagement “Get Involved” office. They advertise they are looking for feedback and community input. Called during office hours, answering machine and no call back in 3 days. Did follow up with an email… Still, one person in the system knows me.