A note from me

The branch clinic oncologists have been quite successful at sustaining my low opinion of them and now that the Patient Concerns person who represents the whole Provincial institute has shut me down I’m going into no-speaking mode. They want me to be silent, “respectful” and submissive and do it by constantly judging my comments, “correcting” my understandings and shitting on my feelings, so shut-down time.

I really have the sense that it is institute policy to decouple feelings from treatment. All their offices are lined with posters telling you you need not “go through this alone” but everything about their behaviour makes you feel wanted only for your disease and mocked for your weakness as a faulty human–well, not human, patient / module.

After months of “care” it’s obvious no change is on the way so I’m printing up the following note to present at each appointment. Have left space at the bottom to fill in the answers to the symptom list they go through at each treatment and will respond to spontaneous with post-it notes to stick in my file.

To my medical care-takers.

Recently I’ve noticed that my conversational style and descriptions of past personal experience appear to be both irritating and understandably irrelevant to my receiving care in the present when those things are not happening. Also as noted on my records, I apparently have used up most of the time allocated to my being interviewed anyway. In response, it is now my policy to try and anticipate questions and submit answers in writing on arrival at the clinic. Further questions will be answered in brief written form by small notes.

With my not asking questions or engaging in unnecessary historical narratives I expect this will speed things up considerably.

Scott Johnson

Advertisements
Post a comment or leave a trackback: Trackback URL.

Comments

  • VanessaVaile  On January 13, 2015 at 1:27 PM

    I really feel like writing them an irate letter, both public and addressed to individuals…. but they’d just take it out on you even more. From: Scottx5’s Blog To: vcrary@yahoo.com

    • scottx5  On January 13, 2015 at 2:38 PM

      This the way Alberta is. I’m starting to see that this isn’t necessarily personal, more that they don’t know how to deal with people.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

No more small talk

“Follow your bliss and the universe will open doors for you where there were only walls.” — Joseph Campbell

Ramblings...

Conquering Kids and cancer

the best liar you know

my life with chronic illness

anotheronewiththecancer

Yes I am the Cancer Curmudgeon

DiepCjourney

Reconstructing A Purposeful Life

Debs OER Journey

A blog about my open learning experiences ... and a few other bits of ordinary life

otherplaceblog

Creativity for Learning in Higher Education

Music for Deckchairs

"In shadowy, silent distance grew the iceberg too": universities, technology, work and life

Almost There ... Virtually Connecting

Enhancing the virtual event experience

NomadWarMachine

Rhizomes and knitting

Should I blog?

Everything you want to know about blogging your cancer journey

Nancy's Point

A blog about breast cancer, loss & survivorship

Full Circle Associates

connections for a changing world, online and off...

Digital Writing Month

a 30-day adventure through the world of digital narrative and art

EdConteXts

International Network of Educators

BC Becky

Never thought I'd want to be identified as a breast cancer survivor …

%d bloggers like this: