No chemo for tomorrow. My platelets are at 80 and need to be minimum 90 to “pass” and receive chemo. I’m usually in the upper 90s and last time exactly at 90 allowed me to be treated but it also made me really sick.

After the 2 minute call from the cancer clinic it occurred to me that uncoordinated care is almost worthless. Even worse is the assumption that the world I live in matches the model imagined by the system. According to the system not getting chemo doesn’t mean I miss a chance for a check-up and an assessment because after all I have an oncologist looking over me–except she quit my case without telling me who would be taking over. I could call the main clinic but they refer me back to miss-no-longer-there.

Could also see my family doctor if she wasn’t away until the end of January. No, there is no back-up covering for her so that’s out. Local hospital? No. Same people as staff the local clinic–not safe with them.

This is a “concern” for my cardiologist in that low platelets can allow the leakage around the aneurism in my heart to possibly increase. Except the path around the wall built by the cardiologist’s assistant can only be passed by my doctor or oncologist–patients aren’t allowed inside the decision zone.

Of course doctors with all their training aren’t fools and set up an elaborate reality of expectation. Not my reality, but mention that to them and out of the system you go. Challenging the mythology sustaining an institution can, in this case, cost you your life.


Post a comment or leave a trackback: Trackback URL.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s


Be well, be edified and enjoy!

No more small talk

“Follow your bliss and the universe will open doors for you where there were only walls.” — Joseph Campbell


Conquering Kids and cancer

the best liar you know

my life with chronic illness


Yes I am the Cancer Curmudgeon


Reconstructing A Purposeful Life

Debs OER Journey

A blog about my open learning experiences ... and a few other bits of ordinary life


Creativity for Learning in Higher Education

Music for Deckchairs

"In shadowy, silent distance grew the iceberg too": universities, technology, work and life

Almost There ... Virtually Connecting

Enhancing the virtual event experience


Rhizomes and knitting

Should I blog?

Everything you want to know about blogging your cancer journey

Nancy's Point

A blog about breast cancer, loss & survivorship

Full Circle Associates

connections for a changing world, online and off...

Digital Writing Month

a 30-day adventure through the world of digital narrative and art


International Network of Educators

%d bloggers like this: