Saw the cardiologist and found it was great to learn that she’s current with my history. As said before over and over the communication aspects of receiving medical care are essentially absent here. No one seems to know anything. There’s no sense of there actually being a person with my name or history on the books except for those brief moments when I’m actually face to face with a doctor. In the case of my cardiologist, that’s two ten minute meetings in about a year and a half.
Felt very strange to talk to someone who knows my medical challenges.It isn’t that there haven’t been problems with the department she works in but it’s amazing how someone “knowing” you matters. The cancer people have made it clear they aren’t interested in anything about me. I do two more blood tests for them and I’m gone.
Only glitch with the cardiology people is an appointment I was supposed to have right after chemo was done. I had been booked for heart surgery before chemo. Then it was decided to do it after I was done with chemo in the spring and apparently the surgeon, like everyone else, lost my file so I need to wait for more months until I find out about surgery. The deal is, if there is no word by April we call the cardiologist and she reminds the surgeon.
As for my family doctor. She’s still on holiday and I’ll run out of the medications she needs to prescribe in a week. Four days without meds and my heart goes erratic and I start passing out. So I arranged with the cardiologist to get refills and I can skip the family doctor for three months. Anyway, she’s already over-booked for whenever she does get back so I couldn’t see her until mid-February.
There are no priorities for patients with chronic illness at the local clinic. The patient is considered, at best, a source of billable hours and otherwise treated like a stranger.
In fact, the whole medical system for rural people is an uncoordinated mess. There is a group now collecting stories like mine to see what can be done. Have sent in some material to them.